- Title Pages
- List of figures, tables and boxes
- Notes on contributors
- Foreword
- Preface
- General introduction
-
Part I How data are changing:Part I editors:Humphrey Southall andJeff Evans -
1 Statistical work: the changing occupational landscape -
2 The creation and use of big administrative data -
3 Data analytics -
4 Social media data -
Part II Counting in a globalised world:Part II editors:Sally Ruane andJeff Evans -
5 Adult skills surveys and transnational organisations: globalising educational policy -
6 Using survey data: towards valid estimates of poverty in the South -
7 Counting the population in need of international protection globally -
8 Tax justice and the challenges of measuring illicit financial flows -
Part III Statistics and the changing role of the state:Part III editors:Sally Ruane andHumphrey Southall -
9 The control and ‘fitness for purpose’ of UK official statistics -
10 The statistics of devolution -
11 Welfare reform: national policies with local impacts -
12 From ‘welfare’ to ‘workfare’, and back again? Social insecurity and the changing role of the state -
13 Access to data and NHS privatisation: reducing public accountability -
Part IV Economic life: Part IV editors:Humphrey Southall ,Sally Ruane andJeff Evans -
14 The ‘distribution question’: measuring and evaluating trends in inequality -
15 Labour market statistics -
16 The financial system: money makes the world go around -
17 The difficulty of building comprehensive tax avoidance data -
18 Tax and spend decisions: did austerity improve financial numeracy and literacy? -
Part V Inequalities in health and wellbeing: Part V editors:Sally Ruane andHumphrey Southall -
19 Health divides -
20 Measuring social wellbeing -
21 Re-engineering health policy research to measure equity impacts -
22 The Generation Game: ending the phoney information war between young and old -
Part VI Advancing social progress through critical statistical literacy: Part VI editors:Jeff Evans ,Sally Ruane andHumphrey Southall -
23 The Radical Statistics Group: using statistics for progressive social change -
24 Lyme disease politics and evidence‑based policy making in the UK -
25 Counting the uncounted: contestations over casualisation data in Australian universities -
26 The quantitative crisis in UK sociology -
27 Critical statistical literacy and interactive data visualisations -
28 Full Fact -
29 What a difference a dataset makes? Data journalism and/as data activism - Epilogue: progressive ways ahead
- Index
Lyme disease politics and evidence‑based policy making in the UK
Lyme disease politics and evidence‑based policy making in the UK
- Chapter:
- (p.319) 24 Lyme disease politics and evidence‑based policy making in the UK
- Source:
- Data in Society
- Author(s):
Kate Bloor
- Publisher:
- Policy Press
There are few ‘accepted’ approaches to dealing with tick- borne infections (including Lyme disease) that have not been challenged. This case study looks at my role in UK Lyme patient’s activism and policy change (for example, related to the NICE clinical guidelines process) focussing on one specific policy issue. It shows how critical analysis of scientific, clinical and other real- world evidence drew on and reflected the ethos of the Radstats network. It is a story showing how I worked with others with statistical skills - using science and evidence to challenge policy successfully. It explains how communities can take action, while using or creating scientific knowledge - to improve policy and people’s health. It shows how networks of communities can engage through social change (based on an understanding of policy and science) to make it more socially relevant and responsive, as well as more scientifically robust.
Keywords: Patients, activism, health, social movements, evidence
Policy Press Scholarship Online requires a subscription or purchase to access the full text of books within the service. Public users can however freely search the site and view the abstracts and keywords for each book and chapter.
Please, subscribe or login to access full text content.
If you think you should have access to this title, please contact your librarian.
To troubleshoot, please check our FAQs, and if you can't find the answer there, please contact us.
- Title Pages
- List of figures, tables and boxes
- Notes on contributors
- Foreword
- Preface
- General introduction
-
Part I How data are changing:Part I editors:Humphrey Southall andJeff Evans -
1 Statistical work: the changing occupational landscape -
2 The creation and use of big administrative data -
3 Data analytics -
4 Social media data -
Part II Counting in a globalised world:Part II editors:Sally Ruane andJeff Evans -
5 Adult skills surveys and transnational organisations: globalising educational policy -
6 Using survey data: towards valid estimates of poverty in the South -
7 Counting the population in need of international protection globally -
8 Tax justice and the challenges of measuring illicit financial flows -
Part III Statistics and the changing role of the state:Part III editors:Sally Ruane andHumphrey Southall -
9 The control and ‘fitness for purpose’ of UK official statistics -
10 The statistics of devolution -
11 Welfare reform: national policies with local impacts -
12 From ‘welfare’ to ‘workfare’, and back again? Social insecurity and the changing role of the state -
13 Access to data and NHS privatisation: reducing public accountability -
Part IV Economic life: Part IV editors:Humphrey Southall ,Sally Ruane andJeff Evans -
14 The ‘distribution question’: measuring and evaluating trends in inequality -
15 Labour market statistics -
16 The financial system: money makes the world go around -
17 The difficulty of building comprehensive tax avoidance data -
18 Tax and spend decisions: did austerity improve financial numeracy and literacy? -
Part V Inequalities in health and wellbeing: Part V editors:Sally Ruane andHumphrey Southall -
19 Health divides -
20 Measuring social wellbeing -
21 Re-engineering health policy research to measure equity impacts -
22 The Generation Game: ending the phoney information war between young and old -
Part VI Advancing social progress through critical statistical literacy: Part VI editors:Jeff Evans ,Sally Ruane andHumphrey Southall -
23 The Radical Statistics Group: using statistics for progressive social change -
24 Lyme disease politics and evidence‑based policy making in the UK -
25 Counting the uncounted: contestations over casualisation data in Australian universities -
26 The quantitative crisis in UK sociology -
27 Critical statistical literacy and interactive data visualisations -
28 Full Fact -
29 What a difference a dataset makes? Data journalism and/as data activism - Epilogue: progressive ways ahead
- Index