People with intellectual disabilities (visually) reimagine care
People with intellectual disabilities (visually) reimagine care
The practice of care–who is cared for, how, and by whom, typically reflects societal values and the (de)valuation of particular groups of people. For many disabled persons, care is an oppressive concept, associated with abuse, institutionalization, disempowerment, and loss of citizenship. Diverging scholarship on and against care reveals significant epistemic tensions among disability scholars and those engaged with a political ethic of care. This chapter shares some of the work done by a group of adults with intellectual disabilities (ID) with public photographic representations of ID and care, in an inclusive research project. Their engagement and critique of one particular image demonstrates the complexity, pervasiveness, and primacy of care to people with ID. The representation and practice of care are visually re-imagined in ways that disrupt taken-for-granted ideas about ID and the giving and receiving of care, and frame care as both a private matter and a public concern.
Keywords: intellectual disability, photographic representation, political ethic of care, inclusive research
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