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Ageing, meaning and social structureConnecting critical and humanistic gerontology$
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Jan Baars, Joseph Dohmen, Amanda Grenier, and Chris Phillipson

Print publication date: 2013

Print ISBN-13: 9781447300908

Published to Policy Press Scholarship Online: September 2013

DOI: 10.1332/policypress/9781447300908.001.0001

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Dementia: beyond structures of medicalisation and cultural neglect

Dementia: beyond structures of medicalisation and cultural neglect

(p.80) (p.81) Five Dementia: beyond structures of medicalisation and cultural neglect
Ageing, meaning and social structure

Margreet Th. Bruens

Policy Press

This chapter discusses the change from the dominant biomedical model of dementia, with its emphasis on disease and loss, towards the humanistic approach - on which Tom Kitwood had an important influence - where the person with dementia is no longer neglected and personhood maintained. Although improvements in care have appeared since then, the stigma in society surrounding dementia is still very strong. And despite all sorts of initiatives and ideas, like that of social citizenship which - among others - is discussed here, the story of people with dementia remains unheard. Raising awareness is done by many organisations, but not always from the person's point of view. This chapter concludes that more needs to be done; awareness raised, stories listened to, and people with dementia recognized as full human beings, deserving dignity and respect.

Keywords:   Dementia, Stigma, Personhood, Social citizenship, Awareness

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