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Critical Perspectives on User Involvement$
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Marian Barnes and Phil Cotterell

Print publication date: 2011

Print ISBN-13: 9781847427519

Published to Policy Press Scholarship Online: May 2012

DOI: 10.1332/policypress/9781847427519.001.0001

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Moving forward: understanding the negative experiences and impacts of patient and public involvement in health service planning, development and evaluation

Moving forward: understanding the negative experiences and impacts of patient and public involvement in health service planning, development and evaluation

Chapter:
(p.129) Ten Moving forward: understanding the negative experiences and impacts of patient and public involvement in health service planning, development and evaluation
Source:
Critical Perspectives on User Involvement
Author(s):

Sophie Staniszewska

Carole Mockford

Andy Gibson

Sandy Herron-Marx

Rebecca Putz

Publisher:
Policy Press
DOI:10.1332/policypress/9781847427519.003.0012

Health and social care services across the UK are committed to involving users in the planning and development of their services. Involvement has taken various forms and its success depends on many factors, including how inclusive health professionals are, their own time and budgetary resources and their skills and motivation to get the job done. While user involvement has many positive impacts on services and research, unforeseen consequences can have a negative impact and threaten its success. For example, there are risks attached to involvement activities, including managerial and professional resistance, and the potential for involvement to increase inequalities and for those involved to experience a form of emotional labour that can have negative personal impacts. This chapter draws on research undertaken at the National Centre for Involvement, including a systematic review, an annual survey of involvement activity across NHS Trusts and a study of how involvement is being embedded into the commissioning of services. It identifies iatrogenic impacts and how these can be mitigated to ensure successful involvement within service development. The chapter suggests strategic and practical ways forward to enable the identification of iatrogenic impacts and to develop plans for incorporating these impacts in productive ways.

Keywords:   public involvement, negative impacts, NHS staff, emotional labour, workload, impact on users, community impact

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