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At Home With AutismDesigning housing for the spectrum$

Kim Steele and Sherry Ahrentzen

Print publication date: 2015

Print ISBN-13: 9781447307976

Published to Policy Press Scholarship Online: May 2016

DOI: 10.1332/policypress/9781447307976.001.0001

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(p.247) Appendix

(p.247) Appendix

Research and Information Sources Used in Developing Goals and Guidelines

Source:
At Home With Autism
Author(s):

Kim Steele

Sherry Ahrentzen

Publisher:
Policy Press

Key

Population

AC:

Autistic children and/or teens

AA:

Autistic adults (also includes mixed sample, e.g. those with autism and other developmental disabilities)

R:

Non-ASC but similar behaviors/symptoms (e.g. elopement among seniors with dementia)

G:

Standards/practices for general population

V:

Manufacturer or vendor literature

Basis for

✓:

Quality of life goals

+:

Design guidelineS

(p.248) (p.249) (p.250) (p.251) (p.252)

Sources of Empirical Studies (Including Literature Reviews of Empirical Research, Evidencex-Based or Research-Informed Guidelines, and Demographic/Statistical Profiles)

Source

Population

For Goals (✓) and Guidelines (+)

Safety-Security

Clarity-Familiarity

Sensory Balance

Privacy-Social

Choice-Independence

Health-Wellness

Dignity

Durability

Affordable

Neighborhood Access

Abbott and McConkey, 2006

AA

+

+

+

+

Ahrentzen, 2002

G

✓+

Ahrentzen and Steele, 2009

AA/AC

+

+

+

+

+

+

+

Algase et al, 2009

R

Altman and Chermers, 1980

G

Amado et al, 2013

AA

+

Anderson et al, 2012

AA

Archea, 1977

G

+

Armitage, 2013

G

+

Bagatell, 2010

AA

Baker et al, 2008

AA/AC

+

+

Barnes and Cooper Marcus, 1999

G

+

Barnes and Design in Caring Environments Study Group, 2002

R

+

+

Baron-Cohen and Wheelwright, 2004

AA/AC

Baron-Cohen et al, 2009

AA/AC

Baum et al, 1982

G

Baumers and Heylighen, 2010

AA

✓+

Baumers and Heylighen, 2014

AA

+

Bauminger et al, 2004

AC

Ben-Sasson et al, 2009

AA/AC

Berman et al, 2008

G

+

Bhat et al, 2011

AA/AC

Bogdashina, 2003

AA/AC

Bolton et al, 2011

AA

Brand and Gaudion, 2012

AA

✓ +

Brand, 2010

AA

+

+

+

+

✓ +

+

+

+

+

+

Brereton and Broadbent, 2007

AC

Bryant and Bryant, 2012

R

+

Carmien et al, 2005

R

+

Cascio et al, 2008

AA/AC

+

+

+

+

Chalfont and Walker, 2013

AA/R

+

Chan et al, 2008

R

Cohen, 1978

G

Cuvo et al, 2001

R

+

+

Davidson and Henderson, 2010

AA

Draheim et al, 2002

R

Dudley et al, 2012

AC

+

+

Duggan and Linehan, 2013

R

Edwards et al, 2012

R

+

Elwin et al, 2012

AA

+

+

Emerson et al, 1999

R

Emmerich et al, 2003

G

+

Evans and Cohen, 1987

G

Evans and McCoy, 1998

G

+

Evans, 1982

G

Farley et al, 2009

AA

+

+

✓+

✓ +

Farrell et al, 2004

G

Fennelly and Crowe, 2013

G

+

Fleming and Purandare, 2010

R

+

+

+

+

Forrest and Kearns, 2001

G

Fournier et al, 2010

AA/AC

+

+

+

Freeley, 2009

AA

+

Frith, 2003

AA/AC

Gabbler-Hall et al, 1993

AA/AC

Gaudion and McGinley, 2012

AA

+

+

+

+

+

+

Geboy et al, 2012

R

+

Geurts and Vissers, 2012

AA

Geurts et al, 2009

AA

Ghaziuddin and Butler, 1998

AC

Gibson et al, 2012

AA

Golant, 2015

R

+

Goodwin et al, 2006

AC

Green et al, 2008

AC

Greenhouse, 2012

R

+

Groden et al, 2005

AC

Hall, 1990

G

Happé and Charlton, 2010

AA

Happé and Frith, 2006

AA/AC

Heller et al, 2007

AA/R

+

+

+

+

Hill, 2004

AA

Hilton et al, 2010

AA/AC

Jackson, 1997

AA/R

+

+

+

+

+

Jackson, 2008

AA

Jansiewics et al, 2006

AC

Jones et al, 2001

AA

+

+

+

Kaplan, 2001

G

+

+

Kaplan, 1995

G

+

+

Kaplan and Kaplan, 1989

G

+

+

Kapp et al, 2011

AA

Kern et al, 2006

AA/AC

Kern et al, 2007

AA/AC

Kinnaer et al, 2014

AA

+

✓+

Kloos and Shah, 2009

R

Kozma, et al, 2009

R

+

+

+

Lang et al, 2010

G

Lawton and Nahemow, 1973

R

✓ +

Lawton, 1980

R

✓ +

✓ +

Lazarus, 1966

G

Lazarus and Cohen, 1977

G

Lee et al, 2011

R

+

+

+

+

Lee et al, 2012

R

+

+

+

+

+

+

+

+

Leekham et al, 2007

AA/AC

Liptak et al, 2011

AA

Manjoiviona and Prior, 1995

AC

Marco et al, 2011

AC

Matson and Rivet, 2008

AA

Messbauer, 2009

AA/R/G

+

Michael Singer Studio, 2014

AA/AC

+

+

+

+

+

+

+

+

+

Milner and Kelly, 2009

R

Minshew et al, 2004

AC

Mostafa, 2010

AC

+

+

+

Mostafa, 2008

AC

+

Mottron et al, 2006

AA/AC

Muller et al, 2008

AA

Murphy et al, 2005

AA

Muselman and Woodruff, 2010

R

National Autism Society, 2014

AA

+

+

+

National Council on Disability, 2010

R

National Research Council, 2011

R

+

O’Connor and Kirk, 2008

AA

O’Neill and Jones, 1997

AA/AC

Orsmond et al, 2004

AA

Osborn, 2009

AA

✓ +

+

Ousley and Mesilov, 1991

AA

Page and Boucher, 1998

AC

Pennington and Ozonoff, 1996

AA

Perkins and Berkman, 2012

AA

Pynoos et al, 2012

R

+

Rapoport, 1990

G

✓+

Rhoades and Browning, 1977

G

Rodin and Langer, 1977

G

Sampson et al, 2002

G

Saxon, Etten and Perkins, 2010

AA

Schuhow and Zurakowski, 2012

AA

Selye, 1956, 1974

G

Sergeant et al, 2007

AA/AC

✓+

+

+

+

✓ +

Shattuck et al, 2012

AA

Siebelink, 2009

AA

+

✓+

Singer, 2013

AC

Skjaeveland and Garling, 1997

G

Smith and Sharp, 2013

AA/AC

+

+

Smolders and de Kort, 2014

G

+

+

Stancliffe et al, 2011

AA

Standifer, 2011

AA

Stevenson et al, 2014

AA/AC

Stokes et al, 2007

AA

Strouse et al, 2013

R

+

+

+

Temple et al, 2000

R

Terman and McMahon, 2012

G

Thompson et al, 1996

R

✓ +

+

Tomchek and Dunn, 2007

AA/AC

Tyler et al, 2011

AA

+

+

Tyler et al, 2008

R

Ulrich, 1999

R

+

+

Unger and Wandersman, 1982

G

Urbano, 2013

AA

Van Alphen et al, 2009

AA

+

+

Van Bourgondien & Schloper, 1996

AA

+

Van den Berg et al, 2007

G

+

Van den Berg et al, 2010

G

+

+

Van Hoof et al, 2010

R

+

+

Wahl and Weisman, 2003

R

+

Walker and Hiller, 2007

G

Ward Thompson et al, 2012

G

Watling et al, 2001

AA/AC

Weden et al, 2008

G

Wedmore, 2011

AA

+

✓+

Westin, 1967

G

Wickelgren, 2012

G

Williams and Boult, 2009

AA

+

+

+

+

+

+

+

+

✓ +

Woo and Leon, 2013

AA/AC

Wu et al, 2008

R

+

www.designadvisor.org

G

+

Zamprelli, 2009

R

+

+

+

+

Zeisel and Tyson, 1999

R

+

Zeisel et al, 2003

R

✓ +

+

Zeisel, 2013

R

+

+

+

+

+

(p.253)

Reflective Practice: Residential Visits by Authors (all in US)

Source

Population

For Goals (✓) and Guidelines (+)

Safety-Security

Clarity-Familiarity

Sensory Balance

Privacy-Social

Choice-Independence

Health-Wellness

Dignity

Durability

Affordable

Neighborhood Access

29 Palms (AZ), 2014: Interviews, site visit

AA/R

+

+

Center for Discovery (NY), 2012: Interviews, site visit

AC

Community Living Options (KS), 2009: Interviews, two sites visits

AA/R

First Place (AZ), 2014: Interviews, site visit

AA

+

+

Hello Housing (CA), 2009: Interviews, three sites visits

AA/R

✓+

+

✓+

Lincoln Oaks (CA), 2009: Interviews, site visit

AA/R

+

+

+

+

Milagros Independent Housing (CA), 2009: Interviews, site visit

AA/R

+

+

+

+

Mission Bay Senior Housing (CA), 2009: Interviews, site visit

R

+

Mt. Bethel Village (NJ), 2013: Interviews, site visit

AA

Stoney Pine (CA), 2009: Interviews, site visit

AA/R

+

+

+

+

Sweetwater Spectrum (CA), 2012, 2013: Interviews, site visits

AA

(p.254) (p.255)

Reflective Practice: Sources of Experts’ Experiences, Assessments

Source

Population

For Goals (✓) and Guidelines (+)

Safety-Security

Clarity-Familiarity

Sensory Balance

Privacy-Social

Choice-Independence

Health-Wellness

Dignity

Durability

Affordable

Neighborhood Access

American Association of People with Disabilities, 2012

AA

+

+

AIA, 2012

G

+

+

Autism Society of Delaware, 2006

AA

✓ +

Beaver, 2006, 2010

AC

+

+

+

+

+

Birch, 2003

AA

Brereton and Broadbent, 2007

AA

Department of Family and Community Services, 2013

AA/R/G

+

+

+

+

+

+

+

Dorhmann, 2014

AA

+

Donvan and Zucker, 2010

AA

Easter Seals Project Action, 2012

AA

+

+

+

+

Enterprise Green Communities, 2015

G/M

+

+

Fleishmann, 2012

AC

Grandin, 1995

AA

Grandin, 2012

AA

Harris and Kinder, 2013

AA/AC

Harker and King, 2004

AA

+

+

✓ +

+

Harmon, 2013

AA

Health Physics Society, n.d

G

+

Healthy House Institute, 2014

G

+

+

Higashida, 2013

AC

Humphreys, 2005

AA/AC

+

Katz, 2013

G

+

Laufenberg, 2004

G

+

Livable Housing Australia, 2012

G

+

Maytum, 2013

AA

+

+

+

+

+

+

McGlaughin et al, 2004

R

+

+

Medical Architecture, 2014

AA

+

+

Mikiten, 2008

AA/R/G

+

National Complete Streets, n.d.

G

+

+

Perry, 2009

AA

Robison, 2007

AA

Scott, 2009

A

+

+

Sinclair, 2010

AA

✓+

Tammet, 2007

AA

The Arc, North Carolina, 2008

AA

+

+

Whitehurst, 2007

AC

+

+

Williams, 1991

AA

Wilson, 2008

AA

(p.256)

Manufacturer Literature (includes Manufacturer Societies)

Source

Population

Goals (✓) and Guidelines (+)

Population

Safety-Security

Clarity-Familiarity

Sensory Balance

Privacy-Social

Choice-Independence

Health-Wellness

Dignity

Durability

Affordable

Neighborhood Access

Acoustikblok, 2014

V

+

Careinfo.org, 2014

V

+

CityQuiet.com, 2014

V

+

Countertop Guides, 2014

V

+

Haigh Hygiene Solutions, 2014

V

+

Hirshberg, 2011

V

+

Home Ventilation Institute, 2014

V

+

HVAC Quick, 2014

V

+

Illuminating Engineering Society, 2014

V

+

+

International Organization for Standardization, 2014

V

+

JTM, 2014

V

+

+

National Council of Acoustical Consultants, 2014

V

+

National Kitchen and Bath Association, 2014

V

+

National Renewable Energy Lab, 2014

V

+

Paperstone, nd

V

+

Phakos, 2013

V

+

QuietRock, nd

V

+

Richlite, 2014

V

+

Rockwell Firesafe Insulations, 2014

V

+

Safestep Grip by Forbo, nd

V

+

+

Smart Home Design Centers, 2014

V

+

Tarkett/Johnsonite, 2014

V

+

+

Wurlitzer, 2014

V

+