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Ageing with disabilityA lifecourse perspective$
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Eva Grassman and Anna Whitaker

Print publication date: 2013

Print ISBN-13: 9781447305224

Published to Policy Press Scholarship Online: January 2014

DOI: 10.1332/policypress/9781447305224.001.0001

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In the shade of disability reforms and policy: Parenthood, ageing and lifelong care

In the shade of disability reforms and policy: Parenthood, ageing and lifelong care

Chapter:
(p.91) Six In the shade of disability reforms and policy: Parenthood, ageing and lifelong care
Source:
Ageing with disability
Author(s):

Anna Whitaker

Publisher:
Policy Press
DOI:10.1332/policypress/9781447305224.003.0006

This chapter focuses on ageing parents and their experience of providing care for a disabled child throughout the lifecourse, and also discusses the ways in which this experience has shaped their lives. The point of departure is empirical findings from qualitative interviews with ageing parents that bring to light the complexity of the experiences of their lifelong care. This responsibility remains during the adult life of the child – despite wide-ranging disability policy reforms, and despite extensive support and assistance through, for instance, personal assistants. A conclusion drawn in the chapter is that various reforms over the decades have had quite small effects on the parent's lives are caregivers and on their life stories. Furthermore, the chapter shows that thoughts about the future represent a fearful theme among the parents. What these life stories provide are biographies characterised by care and a care responsibility that extends even into the future.

Keywords:   Ageing, Disability, Family care, Parenthood, Disability reforms, Care biographies

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